Medical Hot Potato!!! Our evolving story of wading through the mess of our Healthcare system.......

I am writing this to give some insight on our experiences with our HC system now, as opposed to before Obamacare was passed.

We have our own insurance through Blue Cross/Blue Shield. It is a very excellent policy! I am very lucky to have it.... For now! 

My husband Rick was diagnosed with Non Hodgkins Lymphoma a few years ago. He is stage 3 and his type of Lymphoma can't be cured! With that being said, and even with great insurance, we are seeing the effects of the healthcare law that was passed.

I have never before had anything denied, ever! Rick has been denied having a PET scan, which is the scan needed for a person with Lymphoma to see how many lymph nodes have the cancer in them. We have over 600 lymph nodes in our body. The lymph system is our immune system, for those that don't know that. 

We were shocked that a test needed by the cancer doctor to assess Rick's cancer progression was denied. The doctor then had to write things a different way with different wording to eventually get the latest PET scan approved. Rick has had about 6 PET scans to date. I can see this will be a problem from now on with the scans because he is terminal. 

Rick also was prescribed pain medication by the cancer doctor. He NEEDS them! It has now become a problem getting his pain medications.  The cancer doctor advised us that he wanted the family physician to handle his medications. He gave me a print out of what he wanted Rick on. This was about 6 months ago. The family physician had no problem handling this, until this past month. The family physician then told us that the government is watching every single prescription they write and advised that Rick should either have the cancer doctor handle it, or go to a pain management doctor. So, we go back to the cancer doctor and he said he would send him to the pain management doctor to handle it all. The cancer doctor also stated that the govt. is monitoring every single thing with a microscope. Yesterday, I take Rick to the Pain Mgt. specialist and when it was time for him to give Rick his medications that he needs, the doctor looked visibly uncomfortable and said, I thought the cancer doctor was going to handle this. I became quite annoyed and leaned into him and said, Noooo, THAT is why the cancer doctor sent him to YOU! He then tells us the SAME THING I have heard from the other doctors. That the govt. is coming down hard and they are afraid for their licenses. 

I have to note that this Pain Management doctor has now PUSHED to put Rick on Medical Marijuana! Twice! I told him that I don't want that shit in my house, and to write his medications he needs. 

Why is this doctor pushing Pot? My take is that;   1. The governemnt wants them to do this, because they will get the tax revenue from it. 2. The drug companies won't get the money from the sales of prescriptions and 3. Because I have a small co-pay for any prescription, the insurance companies won't have to pay the majority of the cost of his prescriptions. 

Needless to say, I am angry! Very!!!  Rick has had trouble with high anxiety ever since he was diagnosed with Lymphoma. Who wouldn't? So now, because the doctors are scared to death, they are increasing his anxiety by turning him into a medical hot potato! 

Is this the America that we knew? Is THIS what it is all coming to? Are we just that expendable? My answer is, YES! If you are terminal or are seriously ill, you should just die already!  Or, at least that is how the ruling class feels about the rest of us! 

Being the badger that I can be, I got his medications!!!!!!!  For now! 

Views: 312

Comment by Robin on September 3, 2014 at 1:08pm

New week, new update! The hits just keep on coming! Thanks a lot for making my life harder and harder, while trying to help my husband deal with his terminal cancer!  

So we go back for a visit to Rick's pain management doc this morning and I get handed a paper from the desk girl. I look at it and it's a bill for my secondary insuance for Rick's visits! This doctor has (pulled himself out of my network)!!!!! My insurance is Horizon Blue Cross/Blue Shield. I have a very good plan and have had it for years! Because of Obamacare doctors don't even want to be in BC/BS now! This way they can charge what they want to make up for what Obamacare is doing to them. Since I am not rich, I am now going to have to find YET ANOTHER DOCTOR for Rick and dump this one that he has only been to 3 times! I need a doctor to manage Ricks pain that is in my network! I can not believe the mess Obamacare is causing to everyones access to Doctors and healthcare! Just an FYI for you all. Make sure your doctors have not pulled themselves out of your networks.  This is what they mean by limiting access to good doctors, or any doctor for that matter!  Unbelievable!   

Needless to say, I am quite grumpy today! 

Comment by Ruthann on September 3, 2014 at 1:26pm


Contact your insurance carrier and ask for their list of Pain Management Doctors in your area. They may be able to help.

Comment by kwicgov55 on September 3, 2014 at 1:35pm

Robin, so sorry that you and Rick are having to go through this added stress. My heart aches for both of you, and especially your husband. If there is anything that I can ever do to help you, do not hesitate to ask. Meantime, prayers continue for the two of you.

Comment by Jodi180 on September 3, 2014 at 2:24pm

Hey Robin....I can't even imagine your anger and frustration.

I too, have Blue Cross (Nebraska) and they have been in negotiations with CHI (Christian Health Initiatives) most of the summer over rates.  As of 9/1, the deadline, I now have lost the doctors I see and the hospitals I use.  I'm supposed to have a procedure in October and have no idea how that will work.

This nightmare needs to be repealed.

Still in my thoughts and prayers, my friend.


Comment by Robin on September 4, 2014 at 11:51am

Hi Ruthie! You know me, so you KNOW I called my insurance as soon as I walked in the door! LOL They told me a lot of docs are getting out of networks because of all the regulations and hoops they have to jump through. I talked it over with Rick and we will just cover the 20%. I have a co-pay for specialists anyway and since I won't have to pay that I will just pay the other that isn't covered! Not going to stress Rick out any more hunting for a new one and having to get used to him too. I can't take much more! 

Comment by Robin on September 4, 2014 at 11:53am

Thank so much Kwic for your prayers and your offer! Just knowing that I have people like you is more than enough! I'm a pretty tough woman and can handle a lot! I want all here to just know what is going on and what they may expect. The waters are going to get rough! Take care, Kwic! Hugs! 

Comment by Robin on September 4, 2014 at 11:56am

Hi there Jodi! Oh NOO, not you too! I am so sorry to hear you are going through this too. I think we ALL will. This is their way of doing away with private insurance bit by bit, to get to the single payer! My thoughts and prayers for you too, Jodi! Let me know how you make out and what happens ok!



Comment by Jodi180 on September 5, 2014 at 3:32pm

Hey, Robin....I'm not sick yet (as far as I know), but I'm with you.

I'm sticking with my doctors even though it will cost me more.  I refuse to go to a Walgreens or CVS clinic, which is where we're heading.

I'll make cuts to my budget somewhere else.  It's all such B.S!


Comment by Robin on September 5, 2014 at 8:03pm

I hear you, Jodi! You get comfortable and develop relationships with your doctors and they are being ripped out from under us! We just got comfortable with this new pain doc. I'm not going to put Rick through getting used to yet another one! 

Comment by Ruthann on September 17, 2014 at 11:55pm

I was speaking to a handicap van driver today she was so upset. A man she's been driving for a few years had a blood clot in his leg and his private insurance (with input from the gov.) denied him approval for surgery to remove it 5 times. They finally approved it a month ago. Well they removed the blood clot alright BUT because of the postponements they also had to remove his leg.  Welcome to Obama World.


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